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Talking to the Doctor
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Talking With Your Doctor And Health Care Team
An important part of your health care is effective communication
with your doctor and other health professionals. When you are
able to communicate your needs and wishes to the health care
team, they can better meet your needs and improve the quality
of your cancer care.
Who Is Your health Care Team
Cancer treatment often means you will have more than one
doctor and several other health professionals on your care team.
In addition to your primary care doctor, you may have a surgeon
or surgical oncologist, a medical oncologist, and a radiation
oncologist. An oncologist is a cancer specialist. You may have
different nurses who work with each of these doctors. Besides
doctors and nurses, other members might include a nurse practitioner
or physical assistant, pharmacist, social worker, physical therapist,
radiation therapist, dietitian, occupational therapist, psychologist,
or other licensed health care provider. Each member brings different
skills and knowledge to the team.
How Much Do You Want To Know
Some people prefer to know the basic facts about cancer while
others want to know every detail about their situation. People
may wish to learn more as they are already. Either method is
okay. Let your health care team know how much information you
want to know.
Be honest and open when speaking with your doctor and other members
of your health care team. They will look to you for signals that
indicate how much you want know about your cancer and its treatment.
You may get information about cancer from many sources; however,
it is best to ask a member of your health care team, such as
your doctor, how this information relates to your unique situation.
Your friends and family may also want to speak with your doctor
or other health care team members. Be sure to tell your doctor
which friends and family members he or she can talk to about
your cancer.
How Can You Improve Communication?
Communication can be difficult in everyday life but is even
more difficult when someone is experiencing the mixed emotions
that accompany a cancer diagnosis. Learning about your type of
cancer and its treatment can help you to make informed decisions
regarding your situation and know what to expect during this
time.
Some doctors try to share information with patients but use unfamiliar
or technical terms. If you don't understand something, ask your
doctor to explain it to you. Don't be afraid to ask a health
care provider to slow down when speaking, repeat information,
or spell words with which you are not familiar. The following
ideas can help improve communication with members of your health
care team.
If You Have A problem Talking With Your Health Care Team
There are ways to improve communication and resolve problems
with your health care team. First ask to discuss the problem
directly with the health care professional. If this effort fails
to improve the situation, involve a third party, such as a supervisor
or a patient service representative.
Everyone has his or her own style of communication, including
health care professionals. That's why one person may feel more
comfortable with one doctor than another. Some patients may prefer
their doctor to be very direct and proper, while others are looking
for someone who is more sensitive and understanding. You may
not like how a health care professional communicates with you
but do you trust their judgement and expertise? Trust is more
important than being friends with your health care team.
If you do not feel like you can communicate with a
member of your health care team, or if you feel your needs are
not being met after attempts to communicate your needs, you may
with to consider finding another health professional with whom
you feel more comfortable.
Be assertive. You are your best advocate. Because many people
with cancer receive their treatments as an outpatient in a clinic
or doctor's office, more responsibility has been placed on patients
to communicate their needs, including side effects of treatment.
You might need more information about your treatment options
or improved patient control; or you may want to discuss how your
religious beliefs and cultural customs will influence your care.
If your needs are not being met, tell somebody.
Use the word "I" when speaking. Others do not know
what you are thinking, feeling, or experiencing unless you tell
them. Using phrases such as "I feel," "I think,"
and 'I have been experiencing," are helpful when communicating
with others. Phrases such as "you should" can make
others defensive. Be as clear and descriptive as you can, especially
when reporting any side effects.
Listen! Effective communication involves both talking and
listening. You can let people know you are listening if you repeat
what they have to say in your own words. This also helps clarify
that you understand what they said. If you have a hard time remembering
what your health care team tells you because you are feeling
overwhelmed, take notes or bring a friend along to your appointments.
If necessary, you can tape-record your conversation to refer
to later.
Match your words with your body language. Gestures, postures,
and facial expressions that differ from what someone is saying
can confuse the listener.
Let others know what you are thinking and feeling. If people
know you are overwhelmed or confused, then they can help you.
If you say you are confused, the person talking will know that
they need to explain their information in a different way.
Ask questions. People with cancer have many questions, including
some they might be embarrassed to ask, such as how their treatment
could affect their sexuality.
Chances are other patients have had similar concerns and questions.
You might feel rushed or worry that you will take up your doctor's
time if you ask questions. Make a list and put the most important
questions at the top. If you have a long list of questions, you
may wish to ask your doctor when the best time would be to get
the answers. He or she may want to look at your list of questions
so he or she can refer you to people or places where you can
find the answers. Other members of your health care team can
also provide you with valuable information.
Asking Questions
People may not know what to ask their health care team. In
addition to the sample questions below, be sure to write down
some of your own questions. You may want to ask about getting
a second opinion, clinical trials, or your schedule for treatment
and recovery.
What
specific type of cancer do I have?
Has my cancer spread to other parts of my body?
What are my treatment options?
What are the risks and benefits of these treatments?
What treatment do you recommend and why?
How
long do I have to think about my treatment options before I need
to make a decision?
How will my treatment affect my sexuality?
Will
it affect my ability to have children?
What
side effects should I expect?
Which
side effects should I report to you immediately?
If these should occur, how can I reach you after regular office
hours?
It takes practice and effort to improve communication skills.
Because cancer is often a chronic illness, the benefits and results
are worth the effort.
The American Cancer Society is the nationwide, community-based
voluntary health organization dedicated to eliminating cancer
as a major health problem by preventing cancer, saving lives
and diminishing suffering from cancer, through research, education,
advocacy, and service.
For more information, call toll free 1-800-ACS-2345 or on
the internet at www.cancer.org
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